Today is my anniversary! The fourth anniversary of my diagnosis. I walked into my rheumatologist’s office exactly four years ago today, and I walked out an hour later with a diagnosis of EGPA/Churg-Strauss Syndrome. It was my very first rheumatology appointment, and I had spent six months of hard work and perseverance to reach that moment. It was the hardest thing I had ever done in my life. I thought that reaching a diagnosis would be a major turning point toward feeling better, but it has turned out to be just the beginning of what has become a long journey. I’ve spent the last four years working on staying as healthy as I can and trying to keep the vasculitis in check. This has not been easy.
I like to collect and analyze data. So just for fun, here is a list of the immunosuppressants I have received during the last four years:
- 14 rituximab infusions
- 60 IVIg infusions
- 28 mepolizumab injections
- 79 methotrexate injections
- over 30 grams of prednisone – thats over 30,000 mg!
I consider myself to be extremely lucky so far and I am so very grateful to be doing as well as I am. I am especially grateful to my clinicians, the patients I have met through the Vasculitis Foundation, and my family and friends for their support. It looks like my vasculitis is not going anywhere, but neither am I.