Today is the 4th anniversary of my diagnosis. It looks like my vasculitis is not going anywhere, but neither am I.
WORKSHOP: The 19th International Vasculitis and ANCA Workshop – April 7th – 10th, 2019, Philadelphia, PA USA
Announcing the 19th International Vasculitis and ANCA Workshop April 7-10 2019, Philadelphia, PA USA.
The MIRRA trial: Mepolizumab (Nucala) or placebo for the treatment of EGPA/Churg-Strauss Syndrome
Description of the MIRRA trial (Wechsler et al, N. Engl. J. Med. 2017), a Phase III clinical trial of mepolizumab (Nucala) for the treatment of eosinophilic granulomatosis with polyangiitis (EGPA/Churg-Strauss Syndrome).
Tapers, treatments, and flares: My treatment course for EGPA/Churg-Strauss vasculitis (Oct 2014 – Apr 2018)
Treatment ups and downs for my EGPA/Churg-Strauss vasculitis from Oct 2014 through Apr 2018 detailing prednisone tapers, treatment modifications, and flares.
Living with #raredisease EGPA: Eosinophilic Granulomatosis with Polyangiitis
GSK educational video on living with #raredisease EGPA.
Step one: My diagnosis with EGPA/Churg-Strauss vasculitis
Getting a diagnosis is just the first step. Here's the story of my diagnosis with EGPA/Churg-Strauss vasculitis.
Managing vasculitis: A patient’s perspective
Patient webinar about diagnosis with EGPA/Churg-Strauss vasculitis, treatment, tracking symptoms, working with doctors, and strategies for managing vasculitis.