In March 2017, I recorded this webinar for the Vasculitis Foundation’s Road Map to Wellness webinar series. In the webinar, I talk about my diagnosis with EGPA/Churg-Strauss vasculitis and the first few years of my treatment course. I also talk about some of my approaches for tracking symptoms, working with doctors, and strategies for managing […]
quality of life
Disclosure: I received a small sum from GSK for shooting this video, which I donated to charity. For more details and a full list of disclosures, please see the Disclaimer page. This 2 min video was recorded at GSK’s offices at the Navy Yard in Philadelphia last month as part of their educational efforts about
Tapers, treatments, and flares: My treatment course for EGPA/Churg-Strauss Vasculitis (Oct 2014 – Apr 2018)
NOTE: This is not a typical treatment course for patients with EGPA/Churg-Strauss (not that there is such a thing as a “typical” EGPA patient!). It has taken several years and much trial and error to find a combination of medications to try and keep my immune system under control and it’s a work in progress.